Williams Syndrome Association
TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$2.8M
-0.4% YoY
Annual Giving
—
-100.0% YoY
Grant Count
0
-100.0% YoY
Avg Grant Size
—
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,831,149 | $2,841,757 | $2,892,153 |
| Revenue | $2,016,743 | $1,721,772 | $2,421,502 |
| Expenses | $2,143,132 | $1,940,371 | $2,351,418 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $76,521 | $-63,057 | $57,546 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
8 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Williams Syndrome Association fund?
Explore the funder–grantee relationships behind this foundation, powered by GrantGraph™ — our database of 11 million+ funding connections.
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| BILL PALMER | PRESIDENT | 5 | — |
| MEREDITH GREENE | TREASURER | 5 | — |
| JANETRICKS CHEBUKATI OKEYO | SECRETARY | 5 | — |
| GIANNA MORELLO | TRUSTEE | 1 | — |
| KELLY WEI | TRUSTEE | 1 | — |
| BRENDAN LEMIEUX | TRUSTEE | 1 | — |
| ELLEN HOCH | TRUSTEE | 1 | — |
| CLANCEY HOPPER | TRUSTEE | 1 | — |
| AMY NUSSBAUM | TRUSTEE | 1 | — |
| REBEKAH PAGIS | VICE PRESIDENT | 5 | — |
| DANIELLE SHOCKEY | TRUSTEE | 1 | — |
| BEN SAMELSON-JONES | TRUSTEE | 1 | — |
| AARON LOMBARD | TRUSTEE | 1 | — |
| MARIE GLEASON | TRUSTEE | 1 | — |
| LISETTE ENGEL | TRUSTEE | 1 | — |
| MARY VAN HANEGHAN | EXECUTIVE DIRECTOR THROUGH JUL'24 | 40 | $112,811 |
| SARAH SCHAEFER | EXECUTIVE DIRECTOR AS OF JUL'24 | 40 | $145,000 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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