The Parent Project for Muscular
THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$12.6M
+20.4% YoY
Annual Giving
$2.5M
-0.5% YoY
Grant Count
29
+38.1% YoY
Avg Grant Size
$85K
-27.9% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $12,567,424 | $10,440,900 | $8,648,654 |
| Revenue | $14,311,761 | $13,881,085 | $10,753,014 |
| Expenses | $12,881,402 | $12,112,486 | $11,037,641 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $150,586 | $88,569 | $41,696 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
195 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does The Parent Project for Muscular fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| GRETCHEN EGNER | BOARD CHAIRMAN | 8 | — |
| ALPA KHUSHALANI | VICE CHAIR | 8 | — |
| DAWN REZKALLA | TREASURER | 6 | — |
| DEANNE FRIAR | SECRETARY | 6 | — |
| DAVID N HOFSTEIN | EXECUTIVE COMMITTEE | 6 | — |
| SUE APKON | DIRECTOR | 2 | — |
| JEFFREY BIGELOW | DIRECTOR | 2 | — |
| MARU CHAPUR | DIRECTOR | 2 | — |
| TIMOTHY CRIPE | DIRECTOR | 2 | — |
| MICHELLE FURLONG | DIRECTOR | 2 | — |
| LANCE HESTER | DIRECTOR | 2 | — |
| SUSAN HUANG | DIRECTOR | 2 | — |
| JOHN KILLIAN | DIRECTOR | 2 | — |
| RICHARD KLEIN | DIRECTOR | 2 | — |
| SCOTT PERRIN | DIRECTOR | 2 | — |
| COLIN RENSCH | DIRECTOR | 2 | — |
| PATRICIA A FURLONG | PRESIDENT AND CEO | 40 | $370,075 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER | 40 | $293,650 |
| JODI WOLFF | CHIEF PROGRAM OFFICER | 40 | $194,569 |
| ANN MARTIN | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERV. | 40 | $176,600 |
| RACHEL SCHRADER | VICE PRESIDENT, CLINICAL CARE & EDUCATION | 40 | $174,800 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
States
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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