Hht Foundation

MONKTON, MD EIN: 22-3115041 Website

HHT INTERNATIONAL, INC IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS, OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS, RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH, AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT.

Financial Overview

From 2024 IRS Form 990-PF

Total Assets

$5.2M

+48.3% YoY

Annual Giving

$1.8M

+476.0% YoY

Grant Count

16

+60.0% YoY

Avg Grant Size

$113K

+260.0% YoY

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$2M$4M$6M$7M2021202220232024
Metric202420232022
Total Assets$5,213,609$3,515,746$3,323,287
Revenue$6,790,311$3,740,865$2,377,085
Expenses$5,251,461$4,069,058$1,884,387
Qualifying Distributions
Net Investment Income$134,583$69,101$15,516
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$454K$907K$1M$2M0 grants20211 grants202210 grants202316 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

MAYO CLINIC$194KMASSACHUSETTS GENERAL HO…$192KAUGUSTA UNIVERSITY RESEA…$167KTHE UNIVERSITY OF NORTH …$140KYALE UNIVERSITY OFFICE O…$137KUCSF REGENTS OF THE UNIV…$135KUNIVERSITY OF UTAH$131KWASHINGTON UNIVERSITY IN…$124KOREGON HEALTH SCIENCE UN…$110KUT SOUTHWESTERN MEDICAL …$102K

Grant Size Distribution

27 grants across all recorded years

12<$50K5$50–100K10$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Hht Foundation fund?

Explore the funder–grantee relationships behind this foundation, powered by GrantGraph™ — our database of 11 million+ funding connections.

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

MARIANNE CLANCYEXECUTIVE DIRECTOR$183KMELISSA DICKEYDIRECTOR, NAT'L HHT COORDINA…$141KSTEFANIE-NICOLE SCHA…CHIEF OPERATING OFFICER$114K

From 2024 filing

NameTitleHoursCompensation
JOHN DUNNPRESIDENT1
BENJAMIN HOLT ESQVICE-PRESIDENT1
MARC TOPAZ ESQTREASURER1
SAVANAH BENHARTSECRETARY1
ANTHONY ANZELL PHDMEMBER1
SCOTT BOATWRIGHTMEMBER1
GABRIELLA CHOIMEMBER1
JIM LAPIDESMEMBER1
HOWARD LICHTIGMEMBER1
MARIJO MCCUNEMEMBER1
SCOTT OLITSKY MDMEMBER1
BRANDON PROBST PHDMEMBER1
DENNIS SPRECHER MDMEMBER1
KAREN SILBER WEISSEL PHDMEMBER1
ANN TRUSSELLMEMBER1
ROBERT BERKMANMEMBER EMERITUS1
DENNIS ROUTLEDGEMEMBER EMERITUS1
MARIANNE CLANCYEXECUTIVE DIRECTOR40$183,462
STEFANIE-NICOLE SCHAEFERCHIEF OPERATING OFFICER40$114,154
MELISSA DICKEYDIRECTOR, NAT'L HHT COORDINATING CENTER40$141,292

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

15states
+7 more states

Cities

AtlantaAuroraBostonChapel HillChicagoDallasDoylestownIndependenceLos AngelesNew HavenNew York CityPhiladelphiaPortlandRochesterSalt Lake CitySan FranciscoSt Louis

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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