Global Genes
GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$1.5M
-26.7% YoY
Annual Giving
$61K
-74.8% YoY
Grant Count
7
-68.2% YoY
Avg Grant Size
$9K
-20.9% YoY
Go deeper than public filings
PRO- Giving trend analysis — growing or declining?
- Organizations like yours that won grants here
- Strategic fit assessment for your organization
- Application timing recommendations
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,538,482 | $2,099,140 | $2,294,462 |
| Revenue | $7,145,531 | $8,469,402 | $5,557,435 |
| Expenses | $7,415,893 | $8,561,859 | $7,700,189 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $9,473 | $3,487 | $1,739 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
101 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Global Genes fund?
Explore the funder–grantee relationships behind this foundation, powered by GrantGraph™ — our database of 11 million+ funding connections.
- Similar orgs that won grants here
- GrantGraph™ relationship mapping
- 11M+ connections in GrantGraph™
Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| NICOLE R BOICE | FOUNDER & CHIEF MISSION OFFICER | 40 | $254,375 |
| WALT KOWTONIUK | CHAIR | 1 | — |
| KATHERINE MAYNARD | VICE CHAIR | 1 | — |
| SIMON FROST | CFO | 1 | — |
| CHRISTINA HARTMAN | SECRETARY | 1 | — |
| BETSY BOGARD | DIRECTOR | 1 | — |
| KHRYSTAL DAVIS | DIRECTOR | 1 | — |
| ILANA FOGELMAN | DIRECTOR | 1 | — |
| PETER GOODHAND | DIRECTOR | 1 | — |
| HUGH HEMPEL | DIRECTOR | 1 | — |
| RAM IYER | DIRECTOR | 1 | — |
| NEIL KUMAR | DIRECTOR | 1 | — |
| CAROLINE LOEWY | DIRECTOR | 1 | — |
| INDU NAVAR | DIRECTOR | 1 | — |
| DAVID PEARCE | DIRECTOR | 1 | — |
| JOHN REYNDERS | DIRECTOR | 1 | — |
| MORRIE RUFFIN | DIRECTOR | 1 | — |
| ALVIN SHIH | DIRECTOR | 1 | — |
| KELLY MCVEARRY | DIRECTOR | 1 | — |
| CHARLENE SON RIGBY | CEO | 40 | $319,125 |
| VICTORIA WEISS | SENIOR DIRECTOR, FINANCE | 24 | $136,800 |
| KARMEN TRZUPEK | SENIOR DIRECTOR, SCIENTIFIC PROGRAMS | 40 | $179,287 |
| ZOHREH TALEBIZADEH | SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM | 40 | $180,000 |
| LAUREN ALFORD | SENIOR DIRECTOR, MARKETING | 40 | $168,506 |
| TIMOTHY EHRHARD | SENIOR DIRECTOR, IT (TERM 12/24) | 40 | $151,746 |
| CHWENWOAN KUAN | DIRECTOR, PROGRAM OPERATIONS | 40 | $146,285 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
States
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
What could you do with Global Genes on Grantable?
- Assess strategic fit with your organization
- Get AI-generated opportunity briefs
- Monitor for new funding opportunities
- Draft a tailored letter of inquiry