Friends of Fsh Research
FRIENDS OF FSH RESEARCH A 501C3 ORGANIZATION IS WORKING TO IMPACT THE LIVES OF THOSE AFFECTED BY FSH MUSCULAR DYSTROPHY BY FINANCIALLY SUPPORTING FSHD RESEARCH
Financial Overview
From 2025 IRS Form 990-PF
Total Assets
$450K
-50.2% YoY
Annual Giving
$949K
+80.9% YoY
Grant Count
15
+114.3% YoY
Avg Grant Size
$63K
-15.6% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $450,477 | $903,709 | $645,445 |
| Revenue | $863,950 | $869,343 | $745,462 |
| Expenses | $1,317,279 | $611,002 | $788,757 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $30,580 | $25,769 | $14,822 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
Grant Size Distribution
63 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Friends of Fsh Research fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| TERESA COLELLA | PRESIDENT | 12 | — |
| LYNN FISCHER | BOARD MEMBER | 6 | — |
| RICHARD COLELLA | TREASURER | 12 | — |
| BRADLEY H BAGSHAW | VICE PRESIDENT | 2 | — |
| GEORGE SHAW | SECRETARY | 10 | — |
| AMANDA RICKARD | BOARD MEMBER | 3 | — |
| CHRIS HAVEN | BOARD MEMBER | 3 | — |
| KARL VOSS | BOARD MEMBER | 1 | — |
| PREMI HAYNES | BOARD MEMBER | 2 | — |
| ELIZABETH JAS | BOARD MEMBER | 1 | — |
| ERIK SVENSON | BOARD MEMBER | 1 | — |
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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