Dion Foundation for Children with Rare Diseases Inc
The mission is to increase awareness of rare and ultra-rare diseases that affect children with the intention of raising and allocating funds for research and development of treatments and cures.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$174K
-48.2% YoY
Annual Giving
$850K
+1260.2% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$850K
+1260.2% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 |
|---|---|---|
| Total Assets | $173,506 | $334,842 |
| Revenue | $776,008 | $468,167 |
| Expenses | $937,344 | $133,325 |
| Qualifying Distributions | — | — |
| Net Investment Income | — | — |
| Distributable Amount | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Dion Foundation for Children with Rare Diseases Inc fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Courtney P | Dion | 30 | — |
| Joseph N | Dion | 30 | — |
| Margaret | Ryan | 3 | — |
| Julia | Ryan | 3 | — |
| Sarah | OBrien | 3 | — |
| Leah | Santo | 3 | — |
| Samantha | Ryan | 3 | — |
| Chris | Burgoyne | 3 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
States
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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