Childrens Fund for Glycogen Storage

CHESHIRE, CT EIN: 04-3638491 Website

THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.

Financial Overview

From 2024 IRS Form 990-PF

Total Assets

$1.6M

+17.6% YoY

Annual Giving

$28K

-42.5% YoY

Grant Count

1

+0.0% YoY

Avg Grant Size

$28K

-42.5% YoY

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$168K$336K$504K$671K20202021202220232024
Metric202420232022
Total Assets$1,592,478$1,354,107$1,108,745
Revenue$231,044$292,913$552,956
Expenses$44,219$84,668$214,144
Qualifying Distributions
Net Investment Income$26,110$174$106
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$71K$142K$213K$285K1 grants20202 grants20211 grants20221 grants20231 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 1 recipients in 2024

UCONN HEALTH$28K

Grant Size Distribution

6 grants across all recorded years

3<$50K1$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Childrens Fund for Glycogen Storage fund?

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
WENDY-BECKER FELDMANPRESIDENT2
LISA HODESVICE PRESIDE2
DAVID FELDMANSECTRY/TREAS2
VALARIE ROSENDIRECTOR2
TERI REEDDIRECTOR2
FRAN REEDDIRECTOR2
MICHAEL JULIUSDIRECTOR2
HARRIET BONELLIDIRECTOR2
MERI GUSSINDIRECTOR2
SANFORD HODESDIRECTOR2

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

2states

Cities

BethesdaFarmingtonHartford

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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