Child Neurology Education and Research Foundation

LEXINGTON, KY EIN: 41-1984675 Website

The mission of the Child Neurology Foundation is to serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care - and the highest quality of life-for every child.

Financial Overview

From 2024 IRS Form 990-PF

Total Assets

$739K

-63.6% YoY

Annual Giving

$231K

-37.4% YoY

Grant Count

18

+125.0% YoY

Avg Grant Size

$13K

-72.2% YoY

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$1M$2M$3M$4M20202021202220232024
Metric202420232022
Total Assets$739,008$2,028,346$2,744,200
Revenue$1,263,681$3,146,217$1,869,480
Expenses$1,885,833$3,449,342$3,680,696
Qualifying Distributions
Net Investment Income$57,568$70,749$-30,731
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$112K$223K$335K$447K14 grants20207 grants20217 grants20228 grants202318 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

University of Louisville…$25KWashington University$19KSt Marys Hospital for Ch…$13KRegents of the Universit…$13KChildServe Foundation Inc$13KThe Trustees of Columbia…$13KChildrens Mercy Hospital$13KAngelman Syndrome Founda…$13KHugo W Moser Research In…$13KChildren Hospital Corpor…$13K

Grant Size Distribution

54 grants across all recorded years

46<$50K$50–100K8$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Child Neurology Education and Research Foundation fund?

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Amy Brin Jan - FebExecutive Director$312KAllyson EyermannDeputy Director$122KLindsey Taveren Jul …Interim Executive Director$114KBreanna McCormley Ma…Interim Executive Director$76K

From 2024 filing

NameTitleHoursCompensation
Amy Brin Jan - FebExecutive Director40$312,275
Lindsey Taveren Jul - DecInterim Executive Director40$113,844
Allyson EyermannDeputy Director40$121,718
Breanna McCormley Mar - JulInterim Executive Director40$76,190
Dr Donald PearlDirector2
Dr Alison ChristyDirector1
Dr Geetanjali RathoreDirector2
Jason SchmidtDirector2
Jason VinsonDirector0.5
Dr Madeline ChadehumbeDirector2
Dr Sonika AgarwalDirector2
Tristin WestDirector2
Dr Peter KangEx Officio Child Neurology Society President0.5
Dr Yasmin KhakooEx Officio Child Neurology Society President Elect4
Monique TerrellEx Officio Child Neurology Society Executive Director Non-voting Member0.25
Dr Mary ZupancEx Officio Honorary Director Non-voting member4
Dr W Donald ShieldsEx Officio Honorary Director Non-voting member2
Stephen PetersPresident5
Dr M Scott PerryPresident Elect4
Dr Ann TiltonPast President2
Dr John MillichapSecretary2
Dr Rebecca Schultz Feb - DecTreasurer2
Dr Amaris Sanchez LarragoityDirector2
Dr Shaun HussainSecretary2
Timothy Engel JanTreasurer

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

19states
+11 more states

Cities

AKRONAuroraBOSTONBaltimoreBaysideBohemiaBostonCharlottesvilleChicagoClevelandHighland ParkHoustonIrvineJohnstonKansas CityLILBURNLOS ANGELESLouisevilleLouisvilleNEW YORK

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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