Charcot-marie-tooth Association
CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$9.5M
-0.2% YoY
Annual Giving
—
-100.0% YoY
Grant Count
0
-100.0% YoY
Avg Grant Size
—
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $9,548,719 | $9,566,018 | $9,861,023 |
| Revenue | $5,778,743 | $5,761,508 | $10,398,940 |
| Expenses | $5,791,669 | $6,291,966 | $6,545,390 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $421,917 | $77,872 | $15,898 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
42 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Charcot-marie-tooth Association fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ALAN KOROWITZ | BOARD MEMBER (THRU 2/24) | — | — |
| BERNARD COULIE | BOARD MEMBER (EFF 2/24) | — | — |
| CRAIG ZELTSAR | BOARD MEMBER | 1 | — |
| DAN CHAMBY | BOARD MEMBER | 1 | — |
| DAVID APPLE | BOARD MEMBER | 1 | — |
| DAVID COLDIRON | BOARD MEMBER | 1 | — |
| DR MICHAEL SHY | BOARD MEMBER | 1 | — |
| DR STEVEN SCHERER | BOARD MEMBER | 1 | — |
| DR THOMAS DUBENSKY | BOARD MEMBER | 1 | — |
| GARY J GASPER | BOARD MEMBER | 1 | — |
| GILLES BOUCHARD | CHAIRMAN | 1 | — |
| HERBERT BERON | SECRETARY | 1 | — |
| JOHN SVAREN | BOARD MEMBER | 1 | — |
| JON PASTOR | BOARD MEMBER | 1 | — |
| KEVIN MARKS | BOARD MEMBER (EFF 2/24) | 1 | — |
| KEVIN SAMI | TREASURER | 1 | — |
| PARTRICIA VERDUIN OHD | BOARD MEMBER (EFF 4/24) | 1 | — |
| PHYLLIS SANDERS | BOARD MEMBER (THRU 2/24) | 1 | — |
| SUZANNE BRUHN | CHIEF EXECUTIVE OFFICER | 40 | $300,000 |
| WENDY ARNONE | BOARD MEMBER (EFF 3/24) | 1 | — |
| STEVEN O'DONNELL | BOARD MEMBER (THRU 12/24) | 1 | — |
| DAVID NORCOM | BOARD MEMBER (THRU 9/24) | 1 | — |
| KIMBERLY MAGEE | DIRECOT OF FINANCE AND ADMIN | 40 | $98,400 |
| JEANA SWEENEY | CHIEF ENGAGEMENT AND GIFT OFFICER | 40 | $140,000 |
| KATHERINE FORSEY | CHIEF RESEARCH OFFICER | 40 | $125,404 |
| LAUREL RICHARDSON | DIRECTOR OF COMMUNITY OUTREACH | 40 | $101,520 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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