Angelman Syndrome Foundation Inc

AURORA, IL EIN: 59-3092842 Website

THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS BASIC SCIENCE RESEARCH AND CLINICAL TRIALS.

Financial Overview

From 2025 IRS Form 990-PF

Total Assets

$2.6M

-0.6% YoY

Annual Giving

$1.2M

Grant Count

8

Avg Grant Size

$147K

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$1M$2M$3M$4M202020212022202320242025
Metric202520242023
Total Assets$2,637,296$2,653,640$2,274,369
Revenue$3,906,892$3,863,609$3,638,325
Expenses$3,721,265$3,934,210$3,635,328
Qualifying Distributions
Net Investment Income$130,984$330,532$100,472
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$293K$587K$880K$1M0 grants20200 grants20210 grants20220 grants20230 grants20248 grants2025

Grant Insights

How this funder distributes its grants

Top Recipients

Top 8 recipients in 2025

REGENTS UNIVERSITY OF CA…$389KUNIVERSITY OF NORTH CARO…$200KVANDERBUILT UNIVERSITY M…$167KNEW YORK UNIVERSITY$125KUNIVERSITY OF MASSACHUSE…$100KUNIVERSITY OF CONNECTICU…$100KFAST$81KCHILDREN'S MERCY HOSPITAL$12K

Grant Size Distribution

8 grants across all recorded years

1<$50K1$50–100K5$100–250K1$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Angelman Syndrome Foundation Inc fund?

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2025 IRS filing

AMANDA MOORECEO$118K

From 2025 filing

NameTitleHoursCompensation
AMANDA MOORECEO40$118,419
REBECCA BURDINESAC CHAIR1
APRIL CANTERDIRECTOR1
JERALD FRITZDIRECTOR1
TAYLOR GEATHERSDIRECTOR1
ESLIN GUICEDIRECTOR1
DAN HARVEYDIRECTOR2
RICHARD KRAKERDIRECTOR2
MINDY MCBRIBEDIRECTOR1
CHRISTIAN PACHEDIRECTOR2
LIA PERRYMANDIRECTOR1
STEVE PILUSODIRECTOR1
WILLIAM RAKOCZYDIRECTOR
COURTNEY SWAFFORDDIRECTOR1
MARCUS THOMPSONDIRECTOR1
CHARLES WINSLOW IIISECRETARY1
LESLEY MCCULLOUGH MCCALISTERPRESIDENT2
ANDREW OBERWAGERTREASURER2
JOHN SUGDENVICE CHAIR2

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

8states

Cities

AustinChapel HillDavisFarmingtonHadleyKansas CityNashvilleNew York

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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