Amyotrophic Lateral Sclerosis
OUR MISSION IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Financial Overview
From 2023 IRS Form 990-PF
Total Assets
$2.2M
-17.9% YoY
Annual Giving
$1.5M
+273.1% YoY
Grant Count
1
-50.0% YoY
Avg Grant Size
$1.5M
+646.1% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2023 | 2022 | 2021 |
|---|---|---|---|
| Total Assets | $2,179,124 | $2,655,654 | $1,859,209 |
| Revenue | $3,983,976 | $4,199,844 | $2,660,252 |
| Expenses | $4,341,253 | $3,074,863 | $2,454,446 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $252,604 | $1,416 | $2,447 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2023
Grant Size Distribution
7 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Amyotrophic Lateral Sclerosis fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2023 IRS filing
From 2023 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| HAMPTON GRAHAM | CHAIRMAN | 3 | — |
| JOHN CANNISTRA | IMMEDIATE PAST CHAIR | 3 | — |
| GLENN STAMBAUGH | VICE CHAIRMAN | 3 | — |
| TROY FIELDS | TREASURER | 3 | — |
| SHARON MAYBROOK | SECRETARY | 3 | — |
| ALECIA BAILEY | MEMBER | 3 | — |
| BRIAN CHAPPELL | MEMBER | 3 | — |
| JO-ANN CLYNCH | MEMBER | 3 | — |
| JOHN COLLINS | MEMBER (TERM ENDED 12/14/22) | 3 | — |
| JEFF ELBERT | MEMBER | 3 | — |
| BRITTANY HARVEY | MEMBER | 3 | — |
| CHRISTINE HOPKINS REAGAN | MEMBER | 3 | — |
| MELISSA SPRING | MEMBER | 3 | — |
| DR ASHOK VERMA MD | MEMBER | — | — |
| RAY CARSON | PRESIDENT/CEO | 40 | $163,308 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
States
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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