Amyotrophic Lateral Sclerosis Assn
THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.
Financial Overview
From 2025 IRS Form 990-PF
Total Assets
$107.2M
-16.1% YoY
Annual Giving
$8.4M
-44.7% YoY
Grant Count
143
-10.1% YoY
Avg Grant Size
$58K
-38.5% YoY
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Financial History
Multi-year comparison from IRS filings
Revenue
Expenses
Qualifying Distributions
Net Investment Income
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $107,245,128 | $127,891,549 | $94,445,022 |
| Revenue | $68,583,051 | $126,450,238 | $55,567,608 |
| Expenses | $82,239,637 | $98,839,577 | $84,199,819 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,640,602 | $1,597,516 | $1,771,537 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
Grant Size Distribution
967 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Amyotrophic Lateral Sclerosis Assn fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| SCOTT KAUFFMAN | CHAIR | 5 | — |
| LARRY FALIVENA | CHAIR-ELECT | 5 | — |
| NANCY LEAMOND | VICE CHAIR (AS OF 07/24) | 5 | — |
| FRED M DEGRANDIS | VICE CHAIR (THRU 07/24)/TRUSTEE | 2 | — |
| FRED M DEGRANDIS | TRUSTEE | 5 | — |
| SANDRA PIERSOL | SECRETARY | 4 | — |
| MARK STANCIL | TREASURER | 4 | — |
| CONNIE HOUSTON | TRUSTEE | 2 | — |
| EUGENE BRANDON PHD | TRUSTEE | 2 | — |
| DAVID VAN DE RIET | TRUSTEE | 2 | — |
| CHRISTI L KOLARCIK PHD | TRUSTEE (THRU 07/24) | 2 | — |
| J THOMAS MAY | TRUSTEE | 2 | — |
| MARK CALMES | TRUSTEE (THRU 07/24) | 2 | — |
| PAUL INGHOLT | TRUSTEE (THRU 07/24) | 2 | — |
| TOM CARROLL | TRUSTEE | 2 | — |
| MICHAEL BENATAR | TRUSTEE | 2 | — |
| PETER MCKOWN | TRUSTEE | 2 | — |
| REBECCA MOSS | TRUSTEE | 2 | — |
| KENTON VAN HARTEN | TRUSTEE (THRU 10/24) | 2 | — |
| DOUGH BUTCHER | TRUSTEE | 2 | — |
| WILLIAM SOFFELL | TRUSTEE | 2 | — |
| CHRIS TONNIGES | TRUSTEE | 2 | — |
| JESSE YBARRA | TRUSTEE | 2 | — |
| BERNIE ZIPPRICH | TRUSTEE | 2 | — |
| DANIELLE BOISVERT | TRUSTEE | 2 | — |
| ANNETTE BOWMAN | TRUSTEE | 2 | — |
| EVE DRYER | TRUSTEE | 2 | — |
| SEDA GOFF | TRUSTEE | 2 | — |
| KELLY HALL | TRUSTEE | 2 | — |
| STEVE HANON | TRUSTEE | 2 | — |
| CALANEET BALAS | PRESIDENT AND CEO | 37.5 | $491,499 |
| GREG MITCHELL | CHIEF FINANCIAL OFFICER | 37.5 | $288,086 |
| NEIL THAKUR | CHIEF MISSION OFFICER | 37.5 | $195,440 |
| DEAN FEENER | CHIEF INFORMATION & TECHNOLOGY OFFICER | 37.5 | $264,616 |
| BRIAN FREDERICK | CHIEF MARKETING & COMMUNICATIONS OFFICER | 37.5 | $250,253 |
| PATRICK REEDY | CHIEF DEVELOPMENT OFFICER | 37.5 | $270,892 |
| JENNIFER HJELLE | CHIEF COMMUNITY ENGAGEMENT OFFICER | 37.5 | $244,313 |
| NICOLE ECK | CHIEF STRATEGY OFFICER | 37.5 | $231,124 |
| LANCE SLAUGHTER | SVP STRATEGIC ALLIANCES & GOVERNANCE | 37.5 | $245,671 |
| VICKIE LOBELLO | SENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE | 37.5 | $237,001 |
| KULDIP DAVE | SENIOR VICE PRESIDENT RESEARCH | 37.5 | $232,488 |
| KIMBERLY HARDING-MAGINNIS | SENIOR VICE PRESIDENT CARE SERVICES | 37.5 | $221,492 |
| KEITH GARY | VICE PRESIDENT MISSION ACCELERATION | 37.5 | $219,020 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Massachusetts $17.9M (23%)
New York $11.3M (15%)
California $7.8M (10%)
Florida $7.0M (9%)
Maryland $4.9M (6%)
Pennsylvania $4.3M (5%)
Minnesota $3.6M (5%)
Michigan $1.8M (2%)
+39 more states
States
AlabamaArkansasArizonaCaliforniaColoradoConnecticutDistrict of ColumbiaDelawareFloridaGeorgiaIowaIdahoIllinoisIndianaKansasKentuckyLouisianaMassachusettsMarylandMaineMichiganMinnesotaMissouriMississippiNorth CarolinaNebraskaNew HampshireNew JerseyNew MexicoNevadaNew YorkOhioOklahomaOregonPennsylvaniaPrRhode IslandSouth CarolinaSouth DakotaTennesseeTexasUtahVirginiaVermontWashingtonWisconsin
Cities
Agoura HillsAlbanyAlbuquerqueAllentownAmblerAmherstAnn ArborAtlantaAugustaAustinBaltimoreBaton RougeBerwynBethesdaBirmhinghamBirminghamBoiseBooneBostonBoynton Beach
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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