Alternating Hemiplegia of Childhood Foundation Inc
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.
Financial Overview
From 2025 IRS Form 990-PF
Total Assets
$1.7M
+10.5% YoY
Annual Giving
$97K
+720.3% YoY
Grant Count
5
+400.0% YoY
Avg Grant Size
$19K
+64.1% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,698,825 | $1,537,672 | $1,359,089 |
| Revenue | $283,334 | $323,263 | $349,997 |
| Expenses | $200,994 | $220,502 | $198,796 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $83,143 | $38,367 | $41,428 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
Grant Size Distribution
11 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Alternating Hemiplegia of Childhood Foundation Inc fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Lynn Egan | Director | 1 | — |
| Kathy Sharo | Director | 1 | — |
| Mollie Erpenbeck | Director | 1 | — |
| Sharon Ciccodicola | Director | 1 | — |
| Bill Gerber | Director | 1 | — |
| Adalberto Duarte | Director | 1 | — |
| Vicky Platt | President | 4 | — |
| Gene Andrasco | Treasurer | 4 | — |
| Heather Gates | Vice-President of Education & Family Support | 4 | — |
| Cate Cohen | Secretary | 4 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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