Alport Syndrome Foundation Inc
THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$2.8M
+5.6% YoY
Annual Giving
$315K
+223.9% YoY
Grant Count
3
+200.0% YoY
Avg Grant Size
$105K
+8.0% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,817,931 | $2,669,586 | $2,277,966 |
| Revenue | $1,194,735 | $1,016,405 | $990,673 |
| Expenses | $1,003,948 | $612,534 | $499,455 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $131,479 | $63,369 | $170 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
9 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Alport Syndrome Foundation Inc fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| LISA BONEBRAKE | EXECUTIVE DIRECTOR | 65 | $105,000 |
| ANDREW KRONENBERG | BOARD CHAIR | 10 | — |
| RYAN LINDER | SECRETARY | 2.5 | — |
| DANIEL KILPATRICK | TREASURER | 5 | — |
| SHARON LAGAS | CO-FOUNDER, DIRECTOR PAST CHAIR | 5 | — |
| AMY RHODES | DIRECTOR | 5 | — |
| DECEMBER WEST | DIRECTOR | 1 | — |
| MARTY DUNLEAVY | DIRECTOR | 1 | — |
| PHILLIP KUMNICK | DIRECTOR | 1 | — |
| STEPHEN MALACH | DIRECTOR | 1 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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