Alpha-1 Foundation Inc
The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$44.5M
+18.1% YoY
Annual Giving
$2.2M
+36.9% YoY
Grant Count
14
+0.0% YoY
Avg Grant Size
$160K
+36.9% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $44,464,081 | $37,662,654 | $35,496,616 |
| Revenue | $11,614,380 | $10,453,299 | $10,890,084 |
| Expenses | $10,093,036 | $8,547,943 | $6,364,206 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $2,181,265 | $1,628,280 | $1,460,203 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
60 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Alpha-1 Foundation Inc fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Scott Santarella | President and CEO | 40 | $330,774 |
| Randel H Plant | Sen Dir Research Progs | 40 | $143,033 |
| Angela T McBride | Sen Dir Corp Relations | 40 | $127,368 |
| Linda Rodriguez | Development Director | 40 | $122,295 |
| Jeanne Kushner | Sr Dir of Communications | 40 | $100,532 |
| Darrell Kotton | Director | 4 | — |
| Virginia Clark | Physician Director | 8 | — |
| Fred C Walsh | Vice Chair | 8 | — |
| Jennifer Jopp | Director | 4 | — |
| Jon Hagstrom | Chair | 8 | — |
| Kenneth Irvine | Treasurer | 8 | — |
| Peggy Iverson | Secretary | 8 | — |
| Ann Knebel | Director | 4 | — |
| Noel G McElvaney | Director | 4 | — |
| Faron Schonfeld | Director | 4 | — |
| Mark Brantly | Director | 4 | — |
| Catherine Vernon | Director | 4 | — |
| Mark B Delvaux | CFO | 10 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
States
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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